The intent of this sub section is for Scouts and Scouters to exchange posts and thoughts about their own disabilities or that of others to put together a resource of strength
My son was born with epispadias, thats an imcomplete formation of the urinary system. There are many forms, anywhere from not having the lower half of the abdomen closed to tiny imperfections. Well, my son was born without a penis. Male yes, but just an opning and some tissue that looked like a split hot dog. After tests to determine sex, (yes, he is a male) an operation was done to surgically construct a penis when he was 6 months old. The problem was without the necessary muscles in the penis, he could never control his bladder, he just leaked urine all the time which was alright as a baby and toddler, but as he got older, it wasnt as accpetable. He was also diagnosed as dyslexic and ADD. Around ages 7-8 he had his ureters transplanted from his bladder to his colon so he would urinate/defecate stool at the same time. This gave him much better control, but if he laughed or was startled, he would have an "Accident". When we first joined the troop, he would also tent with me, I carried all the necessary supplies as well as a portable toilet that he would use. I had it so if it were to be discovered, it would be mine. Well he caught some heck because he was always with daddy. Eventually at age 13 he had a (this is for boleta)appendicovesicostomy (hope I got this right) The surgeons took his ureters off his colon and put them back on the bladder, augmented it with colon tissue and then took his appendix and connected it to the new bladder and the outside abdomen wall. He now urinates by passing a catheter (10 french Doc) through the stoma into the bladder. He sleeps at night with a catheter in his bladder attached to a drainage bag. He tented with me a few times before he said, " I am who I am" and joined the troop. Showing them the bag. He never had a problem, or none that I heard about.
He is Add, Dyslexic and has disfluencies, but he was elected SPL as well. HE was patrol leader to the 2001 Naitonal Jamboree, on staff at council JLTC for two years and an Eagle scout with a second bronze palm.
In the early days, I and he were ready to quit more than a few times, while his peers came to accept him, the older scouts werent to sure. But I am an old Eagle and I wanted him to see all the benefits of the program. We stuck it out, and both are glad we did. We attended a Naitonal Jamboree together, even if he did need two footlockers, one full of supplies, we have been white water rafting in Maine, been to Gettysburg, Antietam and a whole bunch of other places. Do not quit, move around if you have to. You can find accptance, you may have to be his advocate as I am sure you are now.
In the end, the scouts will mirror the behavior of the adults (that adult association thing, its pretty powerful stuff). You will find a troop that accepts people for who they are, it can be done.